The Lewy Body Dementia Association (LBDA) is a 501(c)(3) nonprofit organization dedicated to raising awareness of the Lewy body dementias (LBD), supporting people with LBD, their families and caregivers and promoting scientific advances. The LBDA was formed by a group of caregivers who met in an online LBD caregiver support group. Discussions about the need of support for LBD caregivers and the lack of public awareness about LBD led to the organization’s creation. The LBDA is the only organization in the United States solely dedicated to improving the lives of LBD families.
The LBDA has established the LBDA Research Centers of Excellence (RCOE) Program, a collaboration with up to 16 academic centers. The University of Michigan Alzheimer’s Disease Center (MADC) has been designated as a Lewy Body Dementia Association (LBDA) Research Center of Excellence. The over-arching objectives of the RCOE are to create a network of nationally-recognized research centers for clinical care and clinical trials in the Lewy body dementias. The MADC’s Rinne Lewy Body Dementia Initiative makes the center uniquely qualified to be a part of this much needed program. To learn more about the LBDA click HERE and to learn more about the MADC’s Rinne LBD Initiative click HERE.